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Sleep has been a big issue for me. When I first got sick, I would probably sleep on average 14-15 hours a day. I would wake up and go to class, come home and pass out from exhaustion for a few hours and then eat dinner, do some homework and crash again. More recently, I have had the opposite problem—sleep is now illusive. I am usually exhausted by the time I get in bed, but often find it hard to go to sleep. My legs will ache and I can never seem to get the temperature right.


For me, sleep is one of the things that has the strongest influence on my symptoms. A recent study at Vanderbilt showed that there was a link between sleep problems and quality of life and that is certainly true for me. If I don’t get enough sleep, I will almost certainly get a headache, low grade fever, bad muscle aches, etc. During periods of time when I do this consistently, I have found that I set back months worth of progress I have made in my illness control. Protect your sleep time. This is my number one rule.


My Strategies for Sleep