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Stevens-Johnson-Syndrome/Toxic Epidermal Necrolysis 2017: Building Multidisciplinary Networks to Drive Science & Translation

In March 2015 significant progress was achieved through a two day workshop organized by the National Institute of Health (NIH) led by the National Human Genome Research Institute (NHGRI) I in collaboration with the Food & Drug Administration (FDA).  This meeting brought together 30 established SJS/TEN researchers to set priorities for the field.

A one day program March 2, 2017, aims to bring together a multidisciplinary group of individuals who are passionate about furthering the science and clinical care of SJS/TEN to network, brainstorm and mentor early investigators in the field.  We are reaching out to a broad array of clinicians and scientists including dermatologists, ophthamologists, clinical pharmacologists, epidemiologists, surgeons, gynecologists, regulatory scientists, informaticians, immunologists, geneticists, skin biologists and basic scientists all of whom have much to contribute to this field.  We will aim to have a presence of patients and SJS/TEN foundation representatives to keep this “real”.

Key goals will be to:

  • Set research priorities and create durable research networks
  • Provide mentorship for early investigators including pre and post-doctoral trainees
  • Present cutting edge research and updates in clinical care
  • Address potential barriers to short and long-term progress in SJS/TEN research.

Key topics of interest will address:

  • Immunopathogenesis, immunogenomics and skin biology
  • Diagnosis, new biomarkers, new approaches
  • SJS/TEN associated with new drugs and new drugs classes (Checkpoint inhibitors)
  • Management controversies in the burns unit
  • Ocular sciences and eye management
  • Special populations (pediatrics, geriatrics, pregnancy)
  • SJS/TEN studies using Informatics and the electronic health record
  • Patients and SJS/TEN foundation perspective
  • Global epidemiology

This meeting will aim to attract an international audience as well as those attending the American Academy of Dermatology Meeting.  A variety of presentation formats will be used to encourage interaction and will include:

  • Round table discussions
  • A debate
  • A noontime scientific poster session aimed at trainees*.

*travel scholarships will be awarded for trainees presenting posters at this meeting.

March 2, 2017

8:00am - 6:15pm

Hyatt Regency Orlando

9801 International Dr

Orlando, FL 32819

Regency Ballroom O-P


To ask a question to a speaker click the following link:

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This event is free,  but registration is required.

Please click HERE for  meeting registration.

Abstract Submission

Deadline to Submit Your ABSTRACT is January 31, 2017

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Funding for this conference was made possible (in part) by (1 R13AR7126701) from the National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS) and all co-funding support provided by the National Human Genome Research Institute (NHGRI). The views expressed in written conference materials or publications and by speakers and moderators do not necessarily reflect the official policies of the Department of Health and Human Services; nor does mention by trade names, commercial practices, or organizations imply endorsement by the U.S. Government.

National Institute of Allergy and Infectious Diseases

U.S. Food and Drug Administration

Commerical Support


Eli Lilly Canada, Inc

Bristol-Myers Squibb

Dunn Sheehan LLP

H M Bio, LLC. 

Murdoch University